hello hello
hey y’all... it’s been a while. since the last time i wrote, much has happened. birthdays, holidays, sick days.
in may, i was hospitalized overnight and received five units of blood. my hemoglobin had dropped to a dangerous 4.9 and i stayed for observation. it’s amazing i was able to function—even drive—at such a low level. at the beginning of this month, i was hospitalized overnight again for low hemoglobin—this time only 7.1. i received three units and was let go. that time, i had just been getting over a nasty cold/virus which probably didn’t help my anemia. (i gave the cold to K and he is STILL getting over it.)
i’ve been receiving my Aranesp injections again, and on tuesday had my blood checked again. it’s holding steady at just under 10, so i’m guessing that it’s finally kicking in. my platelet count is up, and my other counts are as well. however, my white blood cell count is still very low, so i have to be really careful not to get acutely sick. the week before i came down with my cold, i went to several of my nephews’ events: a preschool graduation, gymnastics olympics day, and a birthday party at Fun Max Jump-In ... all breeding grounds for germs.
my rheumatologist says that my Lupus could be bringing my white counts down, so we’re looking into different meds to stabilize them. my own bone marrow is producing as it should, but once my blood cells get into my bloodstream, something eats them up. a long-term treatment (if not cure) is a bone marrow transplant. however, my hematologist says that it’s a last-ditch effort, so i won’t even consider it for now. fingers crossed.
in other news, Karen and John finalized the date of their wedding, 03.07.09. it will take place at Agave Road, which is perfect for the Texas-themed wedding they were hoping for, including a mariachi band and a barbecue buffet. stay tuned for more details.
K and i are still going strong... he works from home during the day while i either go to my appointments or get out of the house. sometimes, though, if i’m feeling bad i’ll sleep for most of the day and we’ll have dinner together. most nights, we watch CSI reruns on cable—we’re junkies. i just finished working on a small contract graphic design project, so now i’m thinking about other projects, like a Save The Date card for Karen and John.
so there’s my update... what’s up with everyone else??
in may, i was hospitalized overnight and received five units of blood. my hemoglobin had dropped to a dangerous 4.9 and i stayed for observation. it’s amazing i was able to function—even drive—at such a low level. at the beginning of this month, i was hospitalized overnight again for low hemoglobin—this time only 7.1. i received three units and was let go. that time, i had just been getting over a nasty cold/virus which probably didn’t help my anemia. (i gave the cold to K and he is STILL getting over it.)
i’ve been receiving my Aranesp injections again, and on tuesday had my blood checked again. it’s holding steady at just under 10, so i’m guessing that it’s finally kicking in. my platelet count is up, and my other counts are as well. however, my white blood cell count is still very low, so i have to be really careful not to get acutely sick. the week before i came down with my cold, i went to several of my nephews’ events: a preschool graduation, gymnastics olympics day, and a birthday party at Fun Max Jump-In ... all breeding grounds for germs.
my rheumatologist says that my Lupus could be bringing my white counts down, so we’re looking into different meds to stabilize them. my own bone marrow is producing as it should, but once my blood cells get into my bloodstream, something eats them up. a long-term treatment (if not cure) is a bone marrow transplant. however, my hematologist says that it’s a last-ditch effort, so i won’t even consider it for now. fingers crossed.
in other news, Karen and John finalized the date of their wedding, 03.07.09. it will take place at Agave Road, which is perfect for the Texas-themed wedding they were hoping for, including a mariachi band and a barbecue buffet. stay tuned for more details.
K and i are still going strong... he works from home during the day while i either go to my appointments or get out of the house. sometimes, though, if i’m feeling bad i’ll sleep for most of the day and we’ll have dinner together. most nights, we watch CSI reruns on cable—we’re junkies. i just finished working on a small contract graphic design project, so now i’m thinking about other projects, like a Save The Date card for Karen and John.
so there’s my update... what’s up with everyone else??
posted by sightofstars | 12:34 PM
1 Comments:
I'm glad to hear that your appointment went well! We haven't done our teatime day or Sex in the City movie fix yet. I have a four day weekend starting on the fourth if you are interested in doing anything....holla-np
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